In early June I was invited to attend and speak at a Patient Care Consortium in Chicago, Illinois as part of my role in an ethnographic study on interprofessional teamwork and patient and family involvement in the intensive care setting. My talk was in front of more than fifty experts across the field of critical …
My take on Marfan Syndrome
Marfan syndrome (MFS) is an example of a chronic illness with acute episodic periods. What makes it a chronic illness is its long lasting nature, which means instead of "curing it" you "manage it". However, there are times when a person with MFS may need immediate or emergency care that if not received can result …